‘Sister Wives’ Maddie Brown Brush’s Daughter Has Foot Amputated

Maddie Brown Brush, star of “Sister Wives” is sharing a health update about her 1-year-old daughter who suffers from a rare genetic disorder which affects bone formation in utero.

The 24-year-old revealed on Instagram that her daughter, Evangalynn ‘Evie’ Kodi had her foot amputated recently and Maddie further explained the situation alongside a photo with her daughter who had her right arm and left leg all bandaged up.

“Evie received some major gifts for her 1st birthday. Her surgeon laid the groundwork for her new foot and mobility it will bring, by way of a boyd amputation. Another gave her some extra mobility in her hand, by clipping her webbing she had in her right hand. She is home and is recovering beautifully,” Maddie wrote.

Evie was diagnosed with fibular aplasia, tibial campomelia and oligosyndactyly (FATCO) syndrome after she was born missing a thumb, toe and one leg was shorter than the other with a bowed tibia. A shortened forearm and two of her fingers were also merged together.

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This is one of the hardest things that Caleb and I have gone through and the decision to share almost as difficult, but after a lot of consideration, we realized that it’s the best thing for our daughter and there is a chance it may help other parents who may also be struggling. . Our beautiful baby daughter Evie has been diagnosed with FATCO syndrome (basically the abbreviation for lots of intense Latin words😅). It’s a rare medical syndrome where bones in extremities do not fully develop. . . It wasn’t a complete surprise; we were aware of some abnormalities before birth. We knew something was wrong when we went in for a routine anatomy ultrasound at 26 weeks and what should have taken 45 minutes, ended up lasting a nerve-wracking two hours. It was then that the doctor told us that they couldn’t find all ten fingers and diagnosed the baby with oligodactyly (fewer than 10 fingers). Although this was better than expected, it was still heartbreaking news. . But when Evie was born, Caleb and I found out our precious little girl was missing more than just one finger. She was missing three fingers, a toe and her fibula. She also had a bowed tibia, a shortened forearm and some fusing in her fingers. It was at this point, the doctors diagnosed her with FATCO syndrome. . We were hesitant to share Evie’s condition publicly for fear that our infant daughter would become the target of mean jokes and cyberbullying. That said, we felt not being open would be even worse and make Evie feel ashamed for something that makes her all the more special in our eyes. .. As far as we have been told, with fewer than 10 recorded cases of her specific findings, it’s unclear what causes the condition. She is healthy in every other way aside from the missing bones. As a family, we have decided to be open as we walk through this journey. We want Evie to always feel pride in who she is, and all that God gave her!

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The couple explained the reason behind being open about their daughter’s rare condition. “We were hesitant to share Evie’s condition publicly for fear that our infant daughter would become the target of mean jokes and cyberbullying. That said, we felt not being open would be even worse and make Evie feel ashamed for something that makes her all the more special in our eyes,” Madison captioned a October 2019 post.

Adding, “As far as we have been told, with fewer than 10 recorded cases of her specific findings, it’s unclear what causes the condition. She is healthy in every other way aside from the missing bones. As a family, we have decided to be open as we walk through this journey. We want Evie to always feel pride in who she is, and all that God gave her!”

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